Parents/Guardians/Carers

The aim of this part of the website is to provide you with some additional background information about what it is we’ve set out to do. Our aim was to develop and evaluate an individually-tailored, age-appropriate information resource to support decision-making and self-care relating to insulin management and electronic blood glucose monitoring for children aged 6-18yrs with type 1 diabetes, compared with available information already being provided in routine clinical practice.

Recruitment

We were interested in recruiting children and young people with type 1 diabetes for the following reasons:

• To tell us what they think of the information about type 1 diabetes that is already available for children in the UK. This will be done in focus group interviews and face to face interviews.-Now completed
• To help us to design a new information pack for children and young people with type 1 diabetes by logging on to our website and telling us what they think of different words and pictures.-Now completed
• To take part in the randomized control trial to see if the new information pack is better or worse than the information that is already available for children in the UK. This will be done in different clinics in England and Wales. Currently recruiting diabetes clinics and children, young people and parents nto the randomised control trial now completed.

Recruitment Map

Information about type 1 diabetes

Diabetes is a common health condition. About 1.8 million people in the UK (approximately 3%) are known to have diabetes, and about 15-20% of them have type 1 diabetes (NCC-WCH, 2004). The incidence of diabetes in children has been rising. The incidence of type 1 diabetes in children under five doubled between 1985 and 1995, while the current estimate of prevalence in the UK is one per 700–1,000 children. Currently there are approximately 25,000 people aged under 25 years in the UK with type 1 diabetes.